The Kentucky Appalachian Stroke Registry (KApSR).

TitleThe Kentucky Appalachian Stroke Registry (KApSR).
Publication TypeJournal Article
Year of Publication2018
AuthorsKitzman P, Wolfe M, Elkins K, Fraser JF, Grupke SL, Dobbs MR
JournalJ Stroke Cerebrovasc Dis
Volume27
Issue4
Pagination900-907
Date Published2018 Apr
ISSN1532-8511
KeywordsBiomarkers, Data Mining, Data Warehousing, Diabetes Mellitus, Electronic Health Records, Female, Glycated Hemoglobin A, Humans, Incidence, Kentucky, Male, Prognosis, Quality Indicators, Health Care, Registries, Research Design, Risk Factors, Stroke, Time Factors, West Virginia
Abstract

BACKGROUND: The population of rural Kentucky and West Virginia has a disproportionately high incidence of stroke and stroke risk factors. The Kentucky Appalachian Stroke Registry (KApSR) is a novel registry of stroke patients developed to collect demographic and clinical data in real time from these patients' electronic health records.

OBJECTIVE: We describe the development of this novel registry and test it for ability to provide the information necessary to identify care gaps and direct clinical management.

METHODS: The KApSR was developed as described in this article. To assess utility in patient care, we developed a "Diabetes Quality Assurance Dashboard" by cross-referencing patients in the registry with a diagnosis of ischemic cerebrovascular disease with patients that were tested for hemoglobin A1c (HbA1c) levels, patients with HbA1c levels diagnostic for diabetes mellitus (DM), and patients with an elevated HbA1c that were formally diagnosed with DM.

RESULTS: For the 1008 patients treated for ischemic cerebrovascular disease in the year studied, 859 (85%) had their HbA1c tested. Of those, 281 had levels of 6.5 or greater, although only 261 (93%) were discharged with a formal diagnosis of DM.

CONCLUSIONS: The KApSR has practical value as a tool to assess a large population of patients quickly for care quality and for research purposes.

DOI10.1016/j.jstrokecerebrovasdis.2017.10.031
Alternate JournalJ Stroke Cerebrovasc Dis
PubMed ID29269220